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Caregiving From a Distance ... Without the Guilt

By Jane Harrison, R.D., HealthAtoZ Writer

When Marc moved to New Jersey for a job promotion, his mother in North Carolina was in good health. Within a year, though, she suffered a stroke and suddenly lost much of her independence. Although she had other family members close by, Marc couldn't help feeling guilty that he could not be more fully involved in her care.

About 7 million adults are long-distance caregivers, mostly for aging parents who live an hour or more away. And many, like Marc, feel guilty - about not being closer, not being able to do enough or not spending enough time with a relative.

What you can do
First and foremost, don't be hard on yourself. Guilt and worry will not serve you or your loved one well. You can be helpful no matter how great the distance. Here's how:

  • Arm yourself with knowledge. Learn as much as you can about your loved one's illness and treatment. The more information you have, the more you will understand what to expect and how to help.
  • Be creative with resources. Get a list of state and local services in your parent's neighborhood from a phonebook or online. This can come in handy in an emergency. If there are no family members nearby, look for friends, clergy or others in your loved one's community who you trust. They can give you a realistic view of what is going on by phone and may also be able to help with needed tasks.
  • Stay in touch. Though you may not be able to pop in for a visit, you can still stay connected through regular phone calls and/or e-mails. Send fun greeting cards or flowers from time to time to keep up your loved one's spirits.
  • Focus on your strengths. Talk with other family members to divide the workload. Consider how your particular skills might be of use:
    • Organized? Create a notebook that includes vital information about health care, social services, contacts and financial or legal matters. Make copies for other caregivers.
    • Good with numbers? Take charge of the bills and bank statements, and/or help with reviewing insurance or health care paperwork.
    • First-rate communication skills? Make yourself the point of contact for medical staff. Help interpret medical updates to keep relatives and friends up to date on changing conditions.
    • Research buff? Maybe your strength is finding information - about treatment options, assisted-living facilities or home health care.
    • Good at moving? Be the one to plan and organize a move to an assisted-living facility.
  • Get support. Many people find that support groups (live meetings or online) are great resources for picking up caregiving tips and techniques. You can also gain comfort from meeting others in your situation.
  • Think ahead. Plan to have family leave or personal days available in case you need to make an unexpected visit. Set aside a special fund to pay for such trips. Being prepared can help ease your mind.
  • Know your limits. As your relative requires increasing levels of care, you may become overwhelmed. Consider hiring a geriatric care manager to coordinate your family member's care.

Finally, take time for yourself. Many long-distance caregivers are also moms, dads, co-workers, wives and/or husbands with loads of other responsibilities. Accept that it's impossible to be everything to everyone. Take credit for doing the best you can under trying circumstances.

Related Articles

Knowing When an Aging Parent Needs Help

Parenting Your Parents

Coping with Caregiver Stress

Caring for the Caregiver

External Sources

National Institute on Aging. So far away: twenty questions for long-distance caregivers. Accessed February 20, 2008.

Family Caregiver Alliance. Long-distance caregiving. Accessed February 21, 2008.

American Association of Retired Persons. Long distance caregiving. Accessed February 21, 2008.

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Tue, Dec 2, 2008



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